CHICAGO — Nobody offered Stephanie Walker a clinical trial when she was diagnosed with metastatic breast cancer. Nobody talked to her about what her options might be in clinical trials. She didn’t have a nurse or patient navigator, either, who could guide her through the treatment process. “It was just me, the oncologist, and his PA,” Walker, a registered nurse and patient advocate with the Metastatic Breast Cancer Alliance, said.
It frustrates her to look back on that time, especially in the context of a new study that she and other patients and patient advocates led that examines the experiences of Black women with metastatic breast cancer. According to the study results that Walker presented at the American Society of Clinical Oncology meeting on Monday, the majority of Black women with metastatic breast cancer don’t get enrolled into clinical trials. Only 40% of Black respondents said they were even offered a trial.